New research published in Neurology and summarized on Healio.com details the specifics of a 14-item self-reported scale designed to improve the management of narcolepsy type 1 among children and adolescents aged 10 to 18 years.
“Researchers recently developed the Narcolepsy Severity Scale (NSS) and validated it among adults with narcolepsy type 1 (NT1),” writes Joe Gramigna. “In the current study, they tailored this scale to pediatric populations.”
“We now developed the pediatric Narcolepsy Severity Scale (NSS-P), a self-report questionnaire, designed to measure the frequency, severity and consequences of the five key NT1 symptoms in children and adolescents,” says Lucie Barateau, MD, PhD, of the Sleep-Wake Disorders Unit in the department of neurology at the Gui-de-Chauliac Hospital in France, in the Healio article. “The aims of this study were: (1) to assess NSS-P psychometric properties, validity and reliability, and (2) to evaluate its responsiveness to treatment in a well-characterized sample of children and adolescents with NT1 from two Reference Centers for Narcolepsy in France.”